Fondation maladies rares

FRENCH FOUNDATION FOR RARE DISEASES

Wearing a solidarity bib for the French Foundation for Rare Diseases is a unique opportunity to offer some hope to people concerned by a rare disease.

In Europe, a disease is considered to be rare if less than 1 person in 2000 is affected by the illness(Rare disease affects few people).

Unfortunately, rare diseases are numerous (7000 are known and a lot more of them probably exist).  The cause is universal. 3 million individuals suffer from rare diseases in France and half of them are children.

Having a rare disease, is a real daily struggle with many obstacles to overcome : uncertain diagnosis, lack of treatment, isolation, daily care ...

It is therefore urgent to accelerate research! This is the main goal we have set for theFrench Foundation for rare diseases, which since 2012 has funded more than 360 scientific research projects.

To find out more about his actions and results, check out his 2018 activity report.

Choosing to wear one of our solidarity bib is the opportunity to join us and get involved in rising the challenge of rare diseases."

 

The UTMB® Challenge of the French Foundation for rare diseases

For the last 5 years, more than 130 trailers have chosen to involve their personnal UTMB challenge by subscribing a solidarity bib of the French Foundation for Rare Diseases. They have created a real community of which we are very proud and grateful.

Thanks to all, former and future trailers, for your faith, commitment, and courage!

Find out photos and live videos: https://www.facebook.com/defi.utmb

Solidarity, enthusiasm, respect and surpassing oneself : all these strong values are promoted by the entire team of the Foundation and by the discipline of ultra-endurance.

In 2020, join our team and give hope to the patients.

Are you still in doubt ?
Watch this short film of 2 minutes on the 2019 edition
Discover our Facebook Page

Contacts for solidarity bibs
Anne-Sophie Blancher : anne-sophie.blancher@fondation-maladiesrares.com
Yannis Hajji : yannis.hajji@fondation-maladiesrares.com

A tax receipt will be sent to you upon receipt of your donation by the Rare Diseases Foundation, which will allow you to deduct 66% of the amount of your donation from your income tax, up to a maximum of 20% of your income. If you represent a company, the tax receipt will allow you to deduct 60% of the amount of the donation from your corporate tax.

We look forward to seeing you in Chamonix in August 2020!